FFC Ricerca 2022-2023 Strategic Project: 1 in 30 and You Don’t Know It. Phase 2

A web platform to enhance the awareness, dissemination and accessibility of the cystic fibrosis healthy carrier testing

FFC Ricerca 2022-2023 Strategic Project: 1 in 30 and You Don’t Know It. Phase 2

A web platform for a better comprehension of the cystic fibrosis carrier test
€ - still needed
0%
€ 150.000 goal

Partner

Cinzia Colombo, Paola Mosconi (Lab. di Ricerca per il Coinvolgimento dei Cittadini in Sanità – Istituto Mario Negri); Chiara Gerardi, Rita Banzi (Centro Politiche Regolatorie in Sanità – Istituto Mario Negri); Emanuela Foglia, Lucrezia Ferrario, Daniele Bellavia, Elisabetta Garagiola, Fabrizio Schettini (LIUC Università Carlo Cattaneo); Giulia Candiani, Chiara Di Lucente, Rossella Failla, Francesca Memini (Zadig srl)

Researchers

Category

AREA 1 Therapies to correct the underlying defect

Duration

1 year

Goal

€ 150.000

Funds raised

€ 150.000

Objectives

The launch of the website testfibrosicistica.it (in Italian), alongside a targeted information campaign, aims at empowering individuals to make informed and conscious decisions regarding the opportunity to undergo the cystic fibrosis healthy carrier screening test. The campaign begins with social media platforms (IG, FB, IN and YT) featuring medical influencers, and expands to traditional media through campaign ads and customized materials (posters, flyers, brochures, and postcards), enabling extensive visibility across the entire national territory. In addition, there will be training webinars for communities and corporations interested in adopting the project.

The presentation of the HTA (Health Technology Assessment) results to various stakeholders (community, trade associations, industry professionals, healthcare providers, and above all institutions) through a dedicated press conference will provide valuable data and insights to support health decision-makers in evaluating the potential adoption of the screening program.

The project is the continuation of phase 1, while phase 3 is available on the dedicated page.

who adopted the project

Fondazione Corrado e Bruno Maria Zaini

€ 60.000

Marafibrositona 2023 -Delegazione FFC Ricerca di Como Dongo

€ 90.000

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